Childhood Cancer Network SA
We are proud to announce the establishment of the Childhood Cancer Network SA (CCNSA). On the 24th of June 2016, nineteen organisations came together to build relationships and create a body to collaborate and advocate on behalf of childhood cancer in South Africa.
CCNSA is a voluntary group of members from the below mentioned organisations that will meet quarterly to discuss thought leadership matters pertaining to childhood cancer in South Africa. The membership is guided by a Terms of Reference document - which provides a common understanding of the aims and objectives of CCNSA. It was agreed that CHOC will initially chair the national group, while the hosting of it will rotate among the members.
These organisations are CHOC Childhood Cancer Foundation SA; AORTIC; Campaigning for Cancer; CANSA TLC, Compassionate Friends, Cupcakes of Hope, Devon Vergne Memorial Fund, HospiceWits, Just Footprints Camps, National Department of Health ( Deputy Director), Directorate Child Youth and School Health, Chronic Diseases, Disabilities & Geriatrics), Organisation for Paediatric Support in SA (OPSSA), Rainbows and Smiles, Reach for a dream, Rare Disease SA, REPSSI, Smile Foundation, South African Childhood Cancer Study Group (SACCSG), The Lettie Love Foundation, Cancer Capsule, The Sunflower Fund; and Wings of Hope. Additionally there are other groups in the rest of the country working with children with cancer who were not able to attend a national meeting but who nonetheless pledged their support to this Network, including The little Fighter Cancer Trust, ICPCN, Patch SA, Pink Trees for Pauline, CanSurvive Cancer Support Groups, Pink Alice and Campaign, My Child has Cancer Trust, The Max Foundation, SANBS and Ependy Angels.
The CHOC CEO, Carl Queiros, who is the current CCNSA Chairman and Spokesperson, stated: “It is very positive that all participants of CCNSA unanimously and enthusiastically agree to the purposes of the Network, which are:
- To work together to act as the protectors and servants for all those affected by childhood cancer;
- To understand the existing gaps in services for childhood cancer and collaboratively develop strategies to address such gaps and the causes of childhood cancer;
- To help ensure and advocate that services and resources for childhood cancer in South Africa are suitably, equally and consistently applied, employed where needed, without misuse, and to the benefit of the children and their families; and
- To develop mechanisms for information-sharing in relation to trends, legislation, policies, data and service provision.
CCNSA’s discussions and actions will be guided by the principle, continued Queiros, to at all times help to ensure the rights of the child and parents are protected and underpinned by the provision made in both the constitution of the country and its legislation. In short, our goal is to work together for the betterment of children diagnosed with cancer, survivors, parents, and the childrens’ loved ones.”